Skip to content
Our story

Our 2024 Impact Report

We’ve fought hard on behalf of people with coeliac disease in the past year. And with the dedication of our supporters, volunteers, and staff, we have achieved key milestones, including:

  • Increasing diagnosis rates for coeliac disease
  • Funding groundbreaking research
  • expanding the availability of safe gluten free food options in venues and stores

Coeliac UK Impact Report 2024.pdf

If you’d like a printed copy of our Impact Report
or full accounts for 2024, please contact us on
0333 332 2033.

A Brief History of Our Achievements

We've spent decades pushing for better diagnosis, safer food, and better lives for people with coeliac disease. Scroll the timeline to see what's changed because we wouldn't let it slide.

2025
Global research, advocating for change

First global open-ended research call attracts world-wide interest from 41 applicants.


We handed in our "Cost of Living" petition, with over 20,000 signatures, to 10 Downing Street to lobby for gluten free prescribing to be retained in England.

2024
Impactful research and medical care advice

Coeliac UK supported research worth £2.2 million, across our 10 research priorities.


1,700 health care practitioners received our information and support about the diagnosis and care of people with coeliac disease.


Our "Cost of (Gluten Free) Living" research report was published and downloaded more than 2,000 times

2023
Increasing diagnosis rates and introducing new support

44,887 people completed our online self-assessment – over 90% of them were advised to be tested for coeliac disease.


Our new combined "Live Well Gluten Free" app launched, providing information on over 190,000 products and 3,000 Coeliac UK "GF" gluten free accredited venues.


Our new "Teen Vitual Club" started to support and connect young people aged 12-15.

2022
Research expands with €1.3 million project

Started the collaboration on a 3 year EU research project worth €1.3 million, investigating gluten in fermented and hydrolysed products.


Hosted our first online Research Summit with coeliac disease experts which identified gaps in existing research, and directed the focus for the future.

2021
Growing reach and research partnerships

Coeliac UK supports 62,000 members 43,000 members used our Gluten Free Food Checker app to help them shop more easily.


We partnered with the "Connect Immune Research" initiative to join up and advance research into autoimmune conditions.

2020
Increased support during Covid

Our helpline team answered over 20,000 enquiries.


We had 118,000 views of the tailored information and advice we published on our "Coronavirus Hub".

2019
Food and Drink Guide passes 150,000 products

Our Food and Drink Guide lists more than 150,000 products suitable for a gluten free diet.


Our Gluten Free Food Checker app wins "Best Use of an App" at the MemCom Membership Excellence Awards.

2018
50th anniversary, major research investment

For our 50th Anniversary, we launch a Research Fund with a £500k commitment from Innovate UK and £250k from Coeliac UK's reserves.


Our Gluten Free Accreditation (GFA) Scheme spans over 3,200 eating out venues that go the extra mile to avoid cross contamination.

2017
Public awareness hits 80%

Public awareness of coeliac disease reaches an all-time high of 80% in the UK, largely due to our work.



Live Well Gluten Free magazine launches for members.
Our Gluten Free Show in Wales attracts over 1,400 people.

2016
Driving gluten free innovation in industry

We host the first gluten free food industry networking event to encourage innovation and improve gluten free consumer offerings.

2015
"Is it coeliac disease?" diagnosis campaign launches

Coeliac UK launches the ambitious diagnosis campaign "Is it coeliac disease?" and our self-assessment symptom checker, aiming to find the half a million undiagnosed people in the UK.

2014
Supermarket partnerships for gluten free food

We launch our Gluten free Guarantee (GfG) retailer scheme to improve gluten free product availability. Asda and Morrisons both sign up.

2013
First app launched

Our first app is launched to help members find gluten free food wherever they are.

2012
Improving gluten free eating out

The Gluten Free Accreditation scheme and trademark are launched to improve the experience of eating out for people affected by coeliac disease. Domino's and Pizza Hut become the first catering chains to take up the scheme.


We launch our Member to Member mentoring scheme for newly diagnosed patients.

2011
Protecting gluten free prescribing

We start the fight to protect prescribing of gluten free food in England, with some successes.


Research funded by us shows the high extent of misdiagnosis of coeliac disease as irritable bowel syndrome.


Our research into the conditions needed for gluten free catering to comply with new EU labelling law proves it's possible to provide safe gluten free dishes in a commercial kitchen.

2010
Better prescribing, better training

We help the pharmacy industry develop a more cost effective approach to prescribing.


We work with Springboard, the catering education charity, to develop and launch online catering training for gluten free food.

2009
National guidelines for diagnosis

We successfully lobby and petition to have diagnosis guidelines for coeliac disease published by the National Institute of Clinical and Health Excellence (NICE).


We work with the EU to ensure that new law setting gluten free labelling thresholds is not excessively restrictive for people with coeliac disease.

2008
We go digital and help make shopping easier

Coeliac UK embraces digital – launching on social media and creating an electronic version of our Food and Drink Directory.


We work with the Food Standards Agency to implement a change to the gluten free labelling standard, making it easier to shop for gluten free food.

2007
Political pressure in Scotland and Europe-wide research

We establish a Cross Party Group on coeliac disease in the Scottish Parliament.


We collaborate to secure a £9 million grant from the EU as part of a pan-European programme to develop a new point-of-care diagnostic tool.

2006
Funding for diagnosis and management

We secured £500,000 funding to improve diagnosis and management of coeliac disease.

2005
Research and representation in Westminster

We hosted our first medical research conference in London to share the latest insights on the condition with healthcare practitioners and researchers.


We established an All Party Parliamentary Group of 34 MPs and Peers at Westminster, to provide a voice in Parliament for people with coeliac disease.

2004
Clinical Experts Onboarded

We initiated our Health Advisory Council – a group of medical experts to inform our work and maintain the high quality of our information services.

2001
Coeliac UK is officially Coeliac UK

"The Coeliac Society" is formally renamed Coeliac UK.


We host four gluten free living events – 2,500 people attend.

1988
European collaboration begins

Coeliac UK meets with national coeliac associations from Spain, Italy, and France, in Barcelona, to form the Association of European Coeliac Societies (AOECS).

1986
Crossed Grain trademark registered

Coeliac UK first registers the "Crossed Grain" symbol as a trademark.

1984
21,000 members supported

We supported 21,000 members.

1976
12,000 members supported

We supported 12,000 members.

1972
The Crossed Grain symbol is born

The "Crossed Grain" gluten free symbol is designed by Coeliac UK member Michael Carpenter (he gifted the copyright to us in 1986). It starts to be used to make it easier to find gluten free foods.


We distribute 30,000 copies of our food list – the beginning of the Food and Drink Directory.


Our first local support group opens in Birmingham, England.

1968
Coeliac UK is founded

Coeliac UK (originally The Coeliac Society) is founded by Elizabeth Segall, mother of a child with coeliac disease, and Peter Benenson, who had the condition (and is also known as a founder of Amnesty International).

Pre Coeliac UK
Understanding the condition

Coeliac disease was first described nearly 2,000 years ago by the Greek physician Aretaeus of Cappadocia, who used the term "coeliac" from koiliakos ("abdominal") for patients with diarrhoea and malabsorption.


In 1888, London physician Samuel Gee (13 September 1839 – 3 August 1911) recognised the disease — mainly in young children — as food-related malabsorption, though he mistakenly recommended toast as treatment.


During World War II, Dutch paediatrician Willem Karel Dicke observed that children with coeliac disease improved when wheat was scarce, identifying gluten as the cause and establishing the gluten free diet still used today.