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Healthcare Professionals
follow up after diagnosis

Follow up after diagnosis

NICE recommends that people with coeliac disease are offered an annual review. 

Review appointment  

NICE provides recommendations for monitoring people with coeliac disease: 

  • Measure weight and height.
  • Review symptoms.
  • Decide on the need to complete a full diet assessment and adherence to the gluten free diet. 
  • Decide on the need for referral to specialist dietitian for nutritional advice.

The NICE quality standard on coeliac disease also highlights that patients living in socioeconomically deprived areas are less likely to attend an annual review and that healthcare professionals should therefore agree a local approach to encourage as many people as possible to attend. 

Review appointment checklist 

When patients attend for their follow up appointment they often return with lots of questions about their new diet and lifestyle. Our annual review checklist has been developed with NHS dietitians specialising in coeliac disease. The checklist covers the key areas to consider during annual review and signposts to further Coeliac UK resources to support you and your patients. 

Ongoing symptoms 

If your patient still has ongoing symptoms you can find out more information here. 

Further information on non-responsive and refractory coeliac disease, including information about support available from specialist centres is available on our website